Seizures have been a challenge my entire life. Sometimes they cloud my thinking, and I must take the time to relax and think more clearly. Expressing myself is also a great challenge, and I often struggle to find the right words to use. Yet, if I push myself very hard, I will begin to think more clearly and express myself more easily. Many people with epilepsy share these same difficulties every single day.
The seizure-driven loneliness and isolation I have felt for years began with a lot of memories when I was much younger going to school and trying to find friends. Making friends was never easy for me and the fear of having a seizure made it even worse. Since very few people knew about my epilepsy, when I did have a seizure at school, I felt isolated and hurt by some of my classmates’ reaction. So I never wanted to talk about it with anyone outside my family until I went to college, where I made a few good friends. When I did confide in them, and they accepted me just as I am, I felt an enormous sense of relief. After I graduated from college, I felt inspired to speak out and to make a documentary film about my illness, “On The Edge, Living With Epilepsy.” My aim in the film was education, to help inform the public —8— —9— Voices from the Heart Louis Stanislaw about the many misperceptions that surround Epilepsy